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Insulin Dependent Diabetics' Journal
20 most recent entries

Poster:now
Date:2008-09-10 09:52
Subject: Clinical Trial Results Are In! Join the JDRF Campaign for CGM Coverage
Security:Public

I just got an email from the JDRF about their campaign to get more healthcare providers to cover continuous glucose monitoring - really cool stuff!

x-posted

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Poster:lost_cosmos
Date:2008-09-04 22:55
Subject:
Security:Public

insulin pumps funding for adults

insulin pumps funding for children

this is specific to ontario canada residents.


if you are searching all the hell over for the funding information from the government for a pump and supplies i _think_ that this applies to everyone. this started just this month to go through for type 1 diabetics to cover adults [aka 18+] which was huge news here but it has been a bitch to find the info out on how to get the funding. i have been bugging the assisted devices folk about it for a week and they had no clue.

the basic story....

heh yeah the government site is VERY good at hiding stuff. i started playing with the lingo in the search function and finally got that form just now and thought i'd best spread it down to those who else may need to know.

i'm just not sure if $610 is enough for 4 months of supplies for a pump....is it?

x-posted

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Poster:faustin
Date:2008-05-16 21:43
Subject:Diabetes 101
Security:Public

I hope you don't mind my promotional posting of an article I've just written. I've been on LJ for 7 years, and created iddm_life. This entry is x-posted to my personal LJ and to insulinpumpers.

* * * * *

I'm going to open the hood on basic diabetes management so you can see the nuts and bolts of how a type 1 diabetic uses blood glucose measurement and insulin injections to manage their blood sugar.

This explanation of diabetes and insulin therapy covers the basics of a Diabetic's How To:

  1. Establishing a basal rate of insulin
  2. Establishing a ratio of insulin-to-carbohydrate
  3. Learning to judge carbohydrate content of food and the effect of what you eat on your blood sugar
  4. Learning to correct high blood sugar with a bolus of insulin


Valhalla CrossFit: Diabetes 101



The above page is a long article (3,000 words, about 5 pages). It includes brief explanations of:
  • blood sugar and insulin

  • the two types of insulin, long- and fast-acting

  • how a diabetic establishes a basal rate of long-acting insulin

  • how a diabetic decides how much insulin to take for food: the official, theoretical model, and the actual practice of experienced diabetics

  • how corrective boluses work

  • insulin injections versus the insulin pump

  • hyperglycemia and hypoglycemia

  • fitness and nutrition for the diabetic



For the non-diabetic, this article is a sound, informative explanation of how a diabetic must survive, cope with his disease and manage his insulin. The more informative 'under the hood', nuts-and-bolts view is extremely helpful for type 1 diabetics' loved ones, coaches or trainers, significant others, or just well-informed and caring friends.

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Poster:vainchicken
Date:2006-06-27 20:26
Subject:
Security:Public

Hi!
Type 1 for little over a year.

Thought I'd join this community because actually posted without whining.... :0) (Yay)

Does anybody have a freestyle flash?? I had to change the batteries in mine today.. was it just me or do those things take quite the prying to get out??

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Poster:misshulia
Date:2006-05-17 14:27
Subject:it's about time!
Security:Public

Finally, a good article on the differences between type 1 and 2! It feels really good to see the media clarify the difference between an autoimmune disease and a metabolic condition.

http://www.nytimes.com/2006/05/17/nyregion/17diabetes.html?pagewanted=1&ei=5070&en=bd578f80a0c70df9&ex=1148529600&emc=eta1

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Poster:phatfhorn
Date:2006-04-17 11:36
Subject:The Ultimate High
Security:Public

I was just curious, who here had the highest blood sugar when they were first diagnosed?

Mine was 780.

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Poster:neanahe
Date:2006-02-06 14:01
Subject:Inspiring Story - Man lives with Type 1 diabetes for 85 years
Security:Public

I read this in yesterday's paper and I thought it was cool.

Diabetic Brothers Beat Odds With Grit and LuckCollapse )

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Poster:now
Date:2005-08-10 10:46
Subject:OmniPod
Security:Public

I think this has already been discussed here, but I got an e-mail today from OmniPod...

The OmniPod Insulin Management System, the discreet, wireless, two-part system that makes continuous subcutaneous intensive insulin therapy (CSII) easier to learn will be introduced on Thursday, August 11, in Washington, D.C., at the American Association of Diabetes Educators (AADE) Meeting & Exhibition – the largest meeting of diabetes educators in the world.

If you want to make diabetes a smaller part of your life, please visit our new website – MyOmniPod.com – for more detailed product information and to see just how small the OmniPod really is.

I think this is pretty exciting, mostly because it seems like the supplies wouldn't be as expensive as supplies for insulin pumps...

:)

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Poster:lost_cosmos
Date:2005-07-26 08:14
Subject:Actos
Security:Public

Hello everyone. I'm new here and I have a question hoping someone has some insight for me on.

I'm just curious if anyone else here is on the medication called Actos? If anyone is I am wondering what your experience with it has been like. I'm hoping to see my endo sometime this week to discuss whats going on with it with her and see what her suggestion is but I am wondering if anyone else is having some of the same difficulties I am with it.

Some of the detailsCollapse )

*x-posted*

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Poster:skyplain
Date:2005-06-26 15:08
Subject:Last night
Security:Public

First off I know this is not my husbands fault... but I need to get this out and cry...
Last night my husband had a low blood sugar... after trying all day yesterday to make surehis level was going to be ok... (he was a work and didn bring a lunch for his 12hr shift) I got him to get his mom to bring him food. I thought ok... he'll be fine now... but last night at 3:30 while I was having a great old sleep, he sat up... and was talking to my cats... I know when he sits up there is bound to be something wrong 'cas he hates waking up in the middle of the night. I asked "hunny why are you sitting up?" he mummbled a few slurred words... I knew his sugar was low, I went to the fridge and got him some Coke (we ran out of OJ that day) and tried to get him to drink it... he took at LITTLE sip and closed the bottle... I said calmly "no no... you need to drink some more." he gave me the dirtiest look and told me to fuck off (pardon the language) I'm not going to go into full details of the whole "arguement" but he insulted me very badly... and was breaking me heart... I finally got him to drink more of the pop and have some peanut butter... and he went back to sleep... but I couldn't... I went into the livingroom and cried for about an hour...

I know this is not his fault and it's not really "him" but it hurts so badly... and I love him so much... also when he's having his sugar lows it scares me to death sometimes because of the look in his eye... it's the look like he could just lash out and beat me... I know he wouldn't do it... but the look terrifies me.

(x-posted to other diabetic related communities)

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Poster:skyplain
Date:2005-06-22 16:18
Subject:
Security:Public

hello I have made a support group for type 1 diabetics and their loved one if anyone wants to join it's jdsupportgroup thank you
Amber

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Poster:faustin
Date:2005-05-02 12:01
Subject:what if you can't trust your BG meter?
Security:Public

I know there's a lot of detail here, but what happened to me is really scary. My meter gave me false readings of very high BG. Because I have learned the hard way that I cannot trust my physical symptoms, I trust my meter absolutely, and gave a big correction bolus. I spent the rest of the evening hypo (barely symptomatic), then tested again before bed, again got a very high reading (465), took another large correction bolus, went to sleep, and the drama began when the gallon or so of diaphoretic sweat got to my wife.

I use a LifeScan Ultra OneTouch meter. (I've had the UltraSmart and the Duo, and promptly got rid of both and went back to the Ultra; I've loved this meter and would swear by it. I've also used Precision SureDose and BD Logic and BD Paradigm Link meters.)

This is the letter I wrote to my endo (I've a great endo and we're very friendly with each other) this morning.

Last night was the worst hypo episode I've ever had.

At 5:27 pm yesterday (Sunday, May 1) my BG meter reported a BG of 439 (I was shocked, I had zero hyper symptoms). I took a correction bolus of 15 units. 40 minutes later, I checked my BG again and it reported 156. I thought That was a fast drop of ~270! I was driving home from Burbank, and hungry, and waiting for my BG to normalize so I could eat. With the 156 reading, I stopped 10 minutes later at In-N-Out for a hamburger. Normally, I take 8 units for this meal. I expected I still had insulin active in my system (I didn't check the actual time, and felt like it had been a lot longer), so I took 6 units, confident it would be enough even if I were sitting still in the car for another hour (I was one hour from home).

I didn't check my BG for another 3.5 hours. At 9:33 pm, I checked my BG, and got 465. Again, I was shocked, I had zero hyper symptoms. But I took a correction bolus of 18 units. Less than an hour later, I fell asleep in bed.

I came conscious to a room full of paramedics, at first I didn't want it to be true that they were here for me & a hypo episode. --- "Oh No, not again!" --- My wife had tried to use the glucagon injection on me (in fact, she had put the needle in me and pushed the plunger, but without mixing the glucagon in.)

My wife had tested my BG twice: at 12:33 a.m. she got "HI", which confused her, and at 12:41 a.m. she got 261. (Which panicked her, as she believed she had injected glucagon into me.)

The EMTs told me they took my BG and it was "less than 20" (no exact number).

I let the EMTs transport me (because my physical symptoms were so severe -- weakness and pain). I tested on the way out, I got BG = 158 at 01:18.

In the ER, they tested my BG with their BG meter and got 67. I did a simultaneous test with my meter and got 400. Nine minutes later, at 2:48, I got 231. Thirty minutes later, before releasing me (AMA), they tested me, with their meter, and got 115.

At home, I tested one last time with my inept-goon glucometer and got 319, at 04:07.

I think when you're unconscious as I was, with (probably) intermittent periods of being semi-conscious, and your wife is screaming at you and shaking you because she thinks you're dead and she killed you --- I think some of that gets through. After the paramedics injected me and before I accepted that I was going through a hypo episode, I thought "so I'm not dead" and "I'm sorry honey".

So here are the BGs:

13:53 BG 228
17:27 BG 436 correction bolus = 15
18:06 BG 156 meal, bolus = 6
21:33 BG 465 correction bolus = 18
24:33 BG "HI" after soaking bed w/ diaphoretic symtoms
24:41 BG 261
01:18 BG 158 after paramedics measured BG <20
02:39 BG 400 ER room tested BG = 67
02:48 BG 231
04:07 BG 319 back at home

Sorry about all the excessive detail, I'm using this email to you to record what happened while it's still fresh. I'm pretty annoyed with this: when you can't trust your physical symptoms, you depend entirely on your glucometer to dose correctly (and survive). So life is going to suck if I can't trust my meter.

The test strips I was using have an EXP date of 08/2005. I thought maybe the test strips were bad, so I switched to a newer package, with EXP = 07/2006, and tested again (no other variables changed --- no control solution, nothing) and again got erratic, high readings.

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Poster:faustin
Date:2005-01-05 09:33
Subject:estimate number of IDDMs affected by Indian Ocean tsunami
Security:Public

I need your help to get numbers quickly: I need to estimate the number of surviving type 1, insulin-dependent diabetics in the areas affected by the Indian Ocean tsunamis, who need insulin, syringes and glucometers & test strips.

That is the ultimate number that I need. To generate that number, the following will help:

1. The % of the population in the western countries that have IDDM (a number we should all know, and I don't!!!!)

2. If you can give reasons for your guess at the same number adjusted for medical realities in the affected areas --- Eg., I would immediately adjust the number of IDDMs by a 20% multiplier: I would guess that there is only 1 IDDM in Indonesia, Thailand, Sri Lanka, for every 5 IDDMs in the United States or western European countries.

I'll be multiplying this percentage by 2 million to get an estimated number of surviving IDDMs that need supplies.

______________________________________________________________

Please don't hold back, any help with estimates will.... well, help!!! Also, I'm unfortunately not on any mailing lists anymore (wish I was) so if you can farm this same question out to mailing lists, that will help. My time is tied up right now being on the phone with pharmaceutical reps, the American Red Cross and other major help agencies.

Thanks in advance!

If you're interested, here are places to follow along with relief efforts and damage estimates:

Xeni Tech: Tsunami Disaster Web Blogs

and generally the NPR site is great: The NPR Tsunami page

I recommend the Wikipedia coverage http://en.wikipedia.org/wiki/2004_Indian_Ocean_earthquake especially a table showing affected countries and numbers of affected. (Edit; sorry about the previous version.)

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Poster:faustin
Date:2004-12-12 23:12
Subject:high bg & sweating
Security:Public

Can anyone make sense of a diaphoretic response to high bg? (diaphoresis --- is the symptom of extreme sweating, when you have a severe hypoglycemic episode.)

I just marked a BG of 335 and was getting sweaty. While it was not an intense sweat like hypoglycemic diaphoresis, it was nonetheless the same kind of diaphoretic sweat --- appearing pretty much all over my body, equally.

I don't understand this, and I haven't really noticed it before; I think it happened one previous time to me. Has it happened to anyone else?

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Poster:kirinqueen
Date:2004-08-30 15:59
Subject:Lantus and infections
Security:Public

re: Lantus and skin infections, doctors` ignoranceCollapse )

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Poster:kirinqueen
Date:2004-08-25 15:58
Subject:New blood glucose meter recommendations?
Security:Public

I need recommendations for a new blood glucose meter whose test strips' retail price is not outrageous. Reliability in the meter and strips that don't require a finger-stick (i.e., you can take the blood from your arms or palms or wherever) would also be a plus. I've used a FreeStyle meter for the past four or five years, and it must be retired. I could always replace that meter with a brand-new one, but the test strips do seem to cost more than other brands.

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Poster:misshulia
Date:2004-08-06 12:07
Subject:hola
Security:Public
Mood:wondering...

Hello again...
I'm preparing to study abroad in Granada, Spain next winter and have been tooling around online to find friendly Spanish and European diabetics. Are any of you guys from Spain/Europe, or have diabetic friends near there? I would love to find a safe community of people when I study there next year. Also- anyone know anything about the medical system there? Obviously I need to research this more, but I have found that the best information about diabetes care has been from people living with it.

Thanks again and happy summer!

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Poster:misshulia
Date:2004-08-03 13:21
Subject:a personal question
Security:Public

that i hope doesn't offend anyone:

has anyone found problems with birth control pills and blood sugar control? what, if any, are the most effective and comfortable modes of contraception that do the least damage to one's blood sugar?
(or: does anyone have a good source for this?)

thanks.

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Poster:_u_breakmyheart
Date:2004-07-02 10:00
Subject:ho-k so..
Security:Public

heyllo everybody.. i just wanted to let u guys know about the new community i have goin.. it's for the type 1 folk.. ya kno the juvies.. the insulin dependant.. ok anyway.. it's called

INSULIN_WHORES

so come n get in on this. we're working on the layout still so please don't be turned away by the plainess. c'mon, u kno u wanna join.... it's good old fashioned fun for those who stab themselves daily!!

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Poster:flyorpretend
Date:2004-04-06 04:00
Subject:I'm being really annoying but...
Security:Public
Mood: anxious

I'm asking the same kind of question, but I'm really stuck. The New York job fell through, so I have to make a decision about whether I'm moving to Denver, Colorado or not.

Does anyone live in or near Denver? Would anyone be willing to help me out by researching options for very low cost health care there? I'd be earning $180 per week, plus room and board. I don't think I'm going to be able to afford health insurance, and I don't think I'm eligible for Medicaid in that state.

In order to accept the job there (which I need to decide on asap) I'd need to find somewhere (maybe a county hospital or clinic) that provides prescription medication (currently I'm on Humalog and Humulin NPH) with very small co-payments - like, around $20.

Thanks in advance, if anyone can help me that would be great... I'm pretty desperate!

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